When I had cancer 2 years ago, at the scan after my radiation they saw "a little something" in my chest. They didn't know what it was or exactly where it was, so I was sent to the nicest (and totally hot) cardiologist who said my heart was totally healthy but maybe I should have a chest CT to see if they could see whatever the "little something" was that they saw on the other scan. I had the chest CT, and they did indeed see a "little something" in my lungs. We have been following it every 3 months since then and nothing has ever changed. Normally when I go for the CT appointment, I feel a little nervous before it and then after it is over I wait until the exact day they tell me the results will be ready and call my doctor immediately because I am anxious to know the results.
This time when I went, I felt calm and free. I had the scan, came home and totally forgot about it. I didn't write it on my calendar to call the doctor to find out about it, I just totally put it out of my mind. I had the scan the day before the kids last day of school before winter break so we had tons to do. I was feeling sort of tired, in fact I kept trying to run on the treadmill each day and feeling so exhausted that I couldn't continue. I was walking instead of running, and it was taking me hours to complete the number of miles I wanted to do. I don't give up easily, so I kept pushing myself and getting more and more frustrated with myself.
This is one example of why it is way easy, although probably frustrating to be married to me. I blame everything on myself. No matter what it is. I can't run today? I must be slacking. Never mind that I have this awful cough that I am ignoring/haven't really noticed and am so tired I can barely wake myself up in the morning. It isn't in my nature to question what is. No matter what is going on, I just accept that this is the reality of the day and move on never questioning why something is not going well, or why I am having difficulty with something. My 7 year old daughter is the same way. In her I can see why sometimes a person should question reality and see how they can make it better, but in myself I just seem to accept whatever is going on and work around it. It does not occur to me that things could be different or easier. I just accept whatever situation there is and adapt. It is good in some instances, but terrible for recognizing that you are sick.
I had the scan on Wednesday night. Thursday night I was going to a cookie exchange. I spent all day Thursday making cookies, which normally I love to do, but this time felt sort of like a chore. I convinced myself that the reason it felt like such a chore is because I had to make the cookies and we all know how I feel about things I have to do, right? If you don't remember, when I feel like I should or have to do anything, I hate it. If you told me I had to eat a piece of cake, as much as I love cake, I would hate every minute of being forced to eat it. Thursday night when it was time to go to the exchange at my friends house, something I would normally love to do, I sat at the kitchen table complaining to my husband that I was just so tired and wanted to go to bed. I even took my temperature to see if I was sick. I had no fever, so I wasn't sick. Despite having an awful cough that prompted me to joke about how I have pneumonia. I went to the cookie exchange and had a good time in spite of the fact that I felt like I wanted to lie down on my friend's kitchen table and fall asleep and none of the cookies looked appetizing at all to me. In fact, at that very moment I couldn't understand why anyone would want to eat anything because I was just so exhausted that eating would have used too much energy.
Saturday morning after the kids came home from religion class, I looked at the cookies we had at our house. None of them looked like "Christmas" to me, so I asked the kids to make a list with me of what cookies we wanted in order for it to seem like Christmas. They named candy cane cookies, gingerbread men (but I use a Swedish spice cookie recipe and not gingerbread since I am not crazy about gingerbread flavor), kolachkys, peanut butter cookies and oatmeal butterscotch cookies. My husband gave me two of my Christmas presents early because they were baking type presents. (Mixing bowls (but pink, not red)
I sent my husband to the store to choose the kolachky fillings that he wanted since he is very particular that it be his grandma's exact recipe and the fillings she always used (she taught me to make them before she died as long as I promised not to share the recipe with anyone). While he was gone, I cranked up the Christmas music and the kids and I started dancing around and making cookies.
After we finished mixing two kinds of cookies, the phone rang. I answered it (if you know me in real life, you might find it shocking that I answered my phone because I am notorious for not answering it). It was my doctor. It was 3:30 pm on Saturday!!!! He was calling about the results of my chest CT. He sounded worried, which then made me worried. When I asked him if everything was ok with the CT, he asked if I maybe had a cold or a cough. When I thought about it, I realized that I do have a cough. He asked how long I have had it. I told him about 2 weeks. He audibly sighed with relief and told me I most likely have pneumonia. I guess if I hadn't had a cough for so long, what they saw on the CT could have meant something bad from the stuff we are following up with, but since I have a cough, it is most likely "just" pneumonia. He seemed surprised I wasn't sicker, but remembered all the stuff I have been through and how I don't really do "sick" like a normal person does. A week after my hysterectomy I was back walking on the treadmill, after my thyroid surgery I came home from the hospital and made myself homemade macaroni and cheese because it was the only food that sounded yummy and easy to swallow when my neck hurt so bad.
Essentially my chest CT was useless this time. I need to go for a chest x-ray a month after I finish my antibiotics, and then another CT in 6 months to be sure that it was just pneumonia and not something bad with the cancer.
I haven't even told many people in my real life that I have pneumonia. I think someone who has had cancer might understand this, but someone who hasn't might not. People talk to you so differently once you have had cancer. There is this voice some people use like you are some sort of delicate thing that needs to be spoken to in quiet voices. There are tons of conversations people are having that abruptly stop when you walk in the room. You know that is because they were talking about you. And while I do think I just had pneumonia, since everyone knows that there is something in my chest that could or could not be cancer, I know if I said anything, people might worry. I am worried.
Until now, this thing in my chest has just been a little nuisance. Something that makes me drive to the CT place and talk to the nice people there for about a minute while they do the scan. Just a little thing I have to take care of every 3 months or every 6 months. Now that something has potentially changed, it is scary. Scary and real to me again.
I had just started becoming secure that everything was going to be ok, and that we were done with major stuff. I had just started trying to figure out what I am going to do once my youngest son goes to school not next year but the year after that. I was considering teaching kindergarten again because I really loved that age. I need to go to school again because I haven't worked outside of my house in over 10 years. I was starting to look into whether or not I can do the things I would need to do online, so I could start now and be ready to actually go to work when he goes to school. The thing is, I don't want to waste my time. I am great at sucking it up and doing hard things when I need to. Going to school would be hard...not the school part, but balancing that with being a mom to 4 kids and still being able to help at their school, etc would be hard. I could do it, but if this cancer thing is going to come back or demand my attention again, I don't want to waste my time. I don't want to waste my time working really hard for something I might not be here to actually do.
I know no one has a guarantee on how long they will live, but most people also don't have things going on that make them take such a close look at whether or not things may be worth it to suffer through. I am not looking at this in a sad way at all, which probably doesn't make sense unless you have been where I am. I have all these plans for the future, and I need to be sure that the hard part is worth it to me now. So, for now I am back in the part where I put my life on hold a little bit and just enjoy each day. Once I feel secure again that I will be here for a while, then I might start making plans again but for now I am once again just going to be.
Cancer is such a nasty disease that wreaks havoc on every single part of your world. Obviously for my kids sake, I don't share my worries with them. I am honest about what is going on, but not in a way that might scare them unnecessarily. For right now, my doctor said he is 90% sure I just have pneumonia, so that is what I told my kids. I have pneumonia and I am on medicine to make it better. In my head though, I wonder what if? Since I can't really talk about this stuff to people in my real life because I just can't stand those pity looks, here it all is. All the thoughts in my head that don't need sympathy, don't need pity, I just need to say them but can't say them to real people...even though I realize you are all real people. My logic is faulty, but I just can't look at people who look at me with pity, and just don't want to hear the way people talk when they know you are sick.
I just want to be me again. Not the sick person who might die. Everyone might die. I know this, and I believe in my heart that I am fine with whenever that happens. I have no guarantees, I still believe everything I wrote about here. And yet, it is still scary and sort of a shock when you believe a scan will be clear and it isn't.
But for now, I'll be rocking out on guitar hero, trying to beat my kids at dance dance revolution and having my daughter's 10 year old New Year's Eve birthday sleepover party. All just regular life stuff because for now I am going to believe that I just have pneumonia. Even though I have this yucky feeling that it might be something worse. When I think things like that, I then scream at myself to stop being so dramatic. Stop taking myself so seriously and lighten up. Because it is probably just pneumonia, and why worry about anything else until it happens, right?
In other news, if you have aol and have been trying to email me, I am not getting those emails for some reason. I found this out when I emailed my best friend about my pneumonia and a few days later she sent me an email from her other account with a recipe for rum balls. I called her and yelled at her (not really, but teased her about not saying anything about my pneumonia and then sending me a recipe) and she read me the email she sent me back from her aol account the day I sent her the pneumonia email. She tested it several times and I never got any of the aol emails. SO my point is that I am not getting those emails, so if you have something you need to tell me, email me from somewhere else or leave a comment here for me. I am not ignoring you on purpose, I am just not getting your emails!
UPDATE (because 911doc asked and I would do anything for him even though I don't know his real name or anything at all about him...not that it bugs me or anything): I am still coughing. My doctor called to check on me and when I told him I am feeling totally fine but still coughing, he said the antibiotics still work for a few days after I am done with them, but if I am not done coughing by the end of next week I need to call him. I don't know what the plan would be at that point, and I don't care right now. I am having a great time getting the basement all set up for my daughter's tenth birthday/New Year's Eve party. Almost everyone who was invited is coming which is both good and bad. We invited EVERYONE she wanted since I figured a lot of people would be out of town. No one seems to be out of town. She is excited and I am excited. My husband has plans to stay upstairs with the boys during the party while I hang out with the girls (if they don't kick me out!)
As for guitar hero, I am having a hard time because every time I cough, I get all lost in where I was on the song and crowd boos me off the stage. I unlocked the second set of songs, but haven't been able to beat any of them yet. My husband beat the devil but has a hard time with it sometimes because he plays a real guitar and the differences mess him up a little. The girls (ages almost 10 and 7) are doing great at it, I think they are both tied with me right now but it takes them more practices to beat the songs than it does me, and my sons (ages 7 and almost 4) could not care less about the game. They enjoy watching us play but really have no desire to try themselves. The boys have been having fun playing with their legos and building the gigantic lego castle I bought for them for Christmas. Then they take these huge dinosaurs we have and have battles. My almost 4 year old then stops everyone and talks about how dinosaurs of course did not live at the same time as people did and that they are just furtending (pretending). He cracks me up even when he doesn't mean to because he takes everything so seriously and is just so intelligent.
We had a huge snowstorm yesterday and on the way home from the gym (should I still be swimming with the cough, or should I be taking a break??? I'll have to ask my doctor I guess) a huge truck full of tanks of something tipped over right in front of me. Everyone was ok, the guy scurried around picking the tanks up and there was a lot of commotion. I stayed home the rest of the day cleaning up the mountains of toys my kids received from relatives.
I am going to make some cookies and watch Ratatouille in a minute. We bought it at Disney World and haven't watched it yet. The kids are not even home right now but I am going to watch it because I have waited long enough! Have a great New Years everyone! Feel free to email me (radioactivegirltoriATgmailDOTcom) but I probably won't be back until next year (that joke never seems to get old to me!)




23 comments:
dear rad girl, 911doc here,
here's the first prayer on this blog entry for your quick and uneventful recovery from simple community acquired pneumonia.
on a second note, before you play ''guitar hero'' all day long, see if you can manage to find the south park episode 'guitar queer-o', you may never touch the game again.
happy new year!
me
Sending you big big virtual hugs my friend. Here's hoping that you get over that pnemonia real fast, and that 2008 brings you much health and happiness.
xo
Oh, and I really liked this line:
I know no one has a guarantee on how long they will live, but most people also don't have things going on that make them take such a close look at whether or not things may be worth it to suffer through.
"just pneumonia" - it's not every day you hear that. i sure hope you get better quick and have your vivacious energy back. :)
big prayers and hugs are being sent your way. here's to as 911doc put it, quick and uneventful recovery from pneumonia
Hey sweetie!
Lots of hugs coming to you in your last package. I was trying to get a bunch of stuff done, and hope you enjoy it!
Ut Prosim
I'm speechless for once, but did read this post with optimism.. for whatever that matters.
P.S. we got Guitar Hero III for Christmas and damn is it ever fun. I love the Wii.
Hugs to you and a wish for a speedy pneumonia recovery! Play the hell out of Guitar Hero until any scary thoughts vanish into thin air like oh-so-many heavy metal one hit wonders. :)
hmm, "just" pneumonia. . . it doesn't surprise me actually that you weren't feeling super sick (although it sounds very un-fun), I have known people who walk around for weeks with pneumonia before diagnosis and treatment. I hope the antibiotics work quickly, both so that you will feel better soon and also that you can get your new scan over and done with. It must be very difficult waiting. I'm thinking of you.
xoxo
I hope your cancer goes away and NEVER comes back. I know how nasty it can be ... You're right with nobody having any guarantees in life part. Kinda makes you wanna step back and think do I really wanna do this?
Beat the fuck out of pneumonia! You go girl :-)
Tori - I know you already know that I get you. Completely and totally. Everything you said, every emotion, every concern, every thought - I get it. And you said it so perfectly.
Once you hear "you have cancer" things are never the same. Even though you know it's probably "just pneumonia", there's always that niggle in the back of your head until you know for sure.
I hate cancer.
I want you to know that you are a hero to me. Your honesty, willingness to share your vulnerabilites, and overwhelming courage are inspiring to me every day and I'm not sure I've ever met a better parent.
You are a beautiful soul that has so obviously touched people in ways that you probably will never know.
You have earned the right to feel however you need to feel and as far as being a teacher...you're one of the best I've ever had.
I can relate, to the "little thingy" in the chest, to the emotions...
I wish you a speedy recovery. And Happy Holidays.
Hey girl.
I can't imagine being sick w/ pneumonia and having 4 kids, a bday party/sleep-over New Years coming and all this other stuff on your mind. You are amazing! I love your strength and courage!
As someone else already said here, you are a teacher... you teach all of us every day how to be an awesome person and a better parent!
Hope you are feeling better soon, and have a wonderful time playing Guitar Hero and at the sleep-over party!!
Here's to a Happy and most of all HEALTHY new year in 2008!!
All my best!!
xoxooxoxox,
Jenn
uh, rad girl, please update us, your fans, on your progress. and who is the best 'guitar hero' player so far?
Rest at home until you feel better. Slowly increase your activity. You may feel weak and tired for up to 6 weeks after your illness.
This is what I found for treatment of Pneumonia. I had it a few years back and it kicked my ass. You really do need to rest. I know for someone as active as you that has to be hard to listen to and obey. LOL
Cancer. It really does put the fear into you that everything is "something" I know what you mean and I think all us cancer people are the same. I am glad that you have "us" to vent to. You don't have to explain your feelings, we " get it"
Please rest and feel better!
I just found you through "woulda, coulda" and have been reading your cancer story. You write so well about the range of emotions.
You are pretty amazing with how loving you are with your kids. Sometimes, it's so easy to forget about the impact on them.
I've been dealing with thyroid cancer since 2005 as well. It can be a real beast - even though it's the 'good' cancer.
911doc- guitar hero is so fun nothing could make me want to not play.
brookem-thank you! I'm so glad to have met you this year!
Sizzle-no kidding! I keep walking around saying just pneumonia, and it does sound a little funny. But considering the alternative, I think pneumonia is the best choice...not that I get to choose.
Furiousball-thanks! I hope you are having an awesome time with your kids!
ut prosim-thanks! Oh, I didn't even know you were sending anything else. Thanks! I can't wait!
Egan-sorry to make you speechless! I think it will all be ok though. Guitar hero is just so much fun, right? Are you playing it on easy or what? How are you doing at it?
wafelenbak-that cracked me up! Yes, I absolutely hope it goes away just that fast!
Sarah-thanks! I appreciate it!
Yoda-thank you! And you sound like you totally get what I was saying. Not that I don't want to do things anymore, but it makes a lot more sense to be sure it is worth my time. I should have been living like this all along!
Jenster-exactly! I knew you would get it.
Chris-I want you to know that I saved your comment in my inbox because it made me feel so good. I will read it any time I need an emotional boost. And you need to know that I think you are an awesome person. I am really happy to have met you this year!
marisa-thank you! I knew you would get it too!
jennifer-yes, mostly I am just crazy that is how I am doing the sick/4 kids/birthday party thing. Luckily I have the energy of that rabbit so when I am sick I am just like a regular person and not actually slowed down too much. Perhaps if I rested I might get better faster though. Anyway, I hpe you have an awesome New Year!
911doc-I did update it just for you. You sound like you are worried about me. That can't be good for your bad boy image!
radioactive girl-it totally throws me every time I get a comment from you. I am always like "did I write myself a comment????" But I know you do get it. We really need to figure out when we can get together! Pneumonia sucks, but cancer sucks even more. I think it was/is just pneumonia and I think I need to rest to get over it. Unfortunately I am not great at resting!
Corrie-my kids are my strength. Everything I do, I do for them. All the "amazing" things about me that people comment on are probably because of how much I love them. I need to be who I am because of them. The kids didn't ask for a sick mom, so they shouldn't have one.
I'm sorry you have been dealing with thyroid cancer too. It does suck, but the part that makes me most mad is that doctors call it "the good cancer". I actually told my doctor that if it is so good, maybe he would like it. He has stopped calling it the good cancer because I explained how mad it made me. No cancer is good, and even if it is better/easier to treat than other cancers, who in the world would want it???? The follow up sucks, the thing in my lung sucks. Nothing about it is good, so they need to stop calling it the good cancer or the easy one. Nothing about it is easy. Maybe it has the best chance of leaving me alive, but it still isn't good!
Good luck to you! Feel free to email me if you want to talk.
Yeah. I just want to be me again too.
Good post. Keep reminding yourself that everyone else is coughy too and you'll feel better soon. Because you will.
Okay, no matter what, all of this SUCKS. I'm really sorry and will follow your blog to watch your good progress. Get over the pneumonia soon because it's tough to spell.
I adore Ratatouille. My niece loves it and my husband works in 3D animation, so we bought it when she spent the weekend and I think we might have loved it more than she did. :)
As for getting back to teaching, there are a lot of online certification programs. Be careful, though, as there are quite a few that are scams. I just enrolled at the University of New England and will do all of my graduate work online. I forget what state you are in, but whichever it is, they will have info on their state government website - just Google "(your state) Department of Education" and a quick phone call will get you on the right track! :)
My comment got too long, sorry. :)
Anyway, I'm glad you had a good vacation and I hope your health improves soon... you are so strong!
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