I called my doctor's office yesterday in the morning because no one ever called me back about my biopsy results last week. The receptionist put me right through to him which gave me a moment of panic. My doctor always introduces himself with his first name. Doctors are not supposed to have first names. He told me the biopsy results were all fine. We talked about how we are working backwards and excluding all the serious things but at this point he isn't sure how to proceed. He asked me if I could get a copy of my hysterectomy operative notes and my ovary removal operative notes. He told me he was so sorry to make me do it but with HIPAA he can't just call over and get it anymore. We talked about how difficult it is for even me to access my own records and that at one doctor's office I have to fax in a form and then it takes 6-8 weeks to get whatever I am requesting. Crazy!
Luckily, since I had cancer and I see a million different doctors who seem not to communicate with each other at all, I always get copies of everything I think they might ever need to see so I have them in these kind of cases. I have a huge file of my medical information so I just pulled it out and faxed it over to him. He is going to look it all over and come up with a plan and call me back later this week.
I thought we were positive I was having surgery but now he is saying he isn't sure. I think he is trying to figure out any other option for me because I have had so much surgery recently. I still can't really see any other option, but then again I am not a doctor. The last time we talked, he did say he was going to have to do the laparoscopy and then remove my cervix in order to get the leftover uterine tissue, so I am still thinking that will be what ends up happening but at least now I have a tiny bit of hope that maybe there will be something else we can try first. He mentioned some pills similar to birth control pills and said we can possibly try that if I want to. Part of me wants to try that because that is way easier to take a pill than to have surgery but then I think about it more and just want to get this all over with and just have the surgery and be done with it all. Plus I am cranky when I am on the pill. Except then I think about it more and remember that the reason I had the hysterectomy in the first place was so I would get it over with and be done with it all. That was 3 years ago! I am still not done. So if I had this surgery now, would I still be talking about it 3 years from now? Because if it isn't going to make a difference and I am still going to have to worry about medical crap all the time why don't I just live with what is going on. Why don't I just forget about doing anything else, forget about testing, etc. and then just be. The medical stuff seems to never stop anyway, so if I ignored it all, how much worse could it get. (I know, I am not seriously considering giving up)
I will say that I have a cold again and feel tired and yucky so it makes me just want to throw in the towel on all the medical stuff right now. I just want it to all be over and not have to worry about it all ever again. I know that won't happen, that I will always have to go to more doctors than most people, will always have to have extra tests, etc. but it sure is frustrating to have to deal with it all. It isn't frustrating for myself as much as it is frustrating that it affects so many other people and then I feel guilt about it all. It isn't my fault, I know that, I know I am not causing it but it just feels bad to be the one bringing it.
Yesterday my 11 year old daughter brought home a bunch of notebooks from school because their last day is Thursday. I looked through them and then came to one that is a notebook she writes back and forth to her teacher in. I asked her if I could read it and she said yes. I love her teacher like crazy and am so happy she got to know her. I am sad, however, that a lot of their letters are about me. My 11 year old doesn't tell me she is worried much but a big chunk of her letters were about how she wants to be a chemist when she grows up so she can find a cure for cancer. She talks a lot about how she feels about things and her teacher is wonderful in her responses but I just wish she could be writing about boys or something (she does, but I wish that could be her biggest concern). If this were all just affecting me, then fine, I am a big girl and I can take it but come on already with my kids being worried and sad. Enough!
That is a sucky note to end this on, but I can not think of anything that would make sense to add at the end to finish with something happy. I thought I was just going to write about the deer today. I just never know what I will get when I sit down to write something. Thank you for being my therapy today!
P.S. spellcheck wanted to change "laparoscopy" to "periscope". That would certainly be a funny surgery. Although if you think about it, it sort of is similar I guess.


16 comments:
i always use a periscope when i perform laproscopy
furiousball-makes sense, right?
I'm thinking of you with a lot of love and support
right
now
xoxo
That deer looks really cool, all sleek and like he belongs there on the driveway.
As for your health issues, sorry to hear about making it harder to get the meds you need. Seems like the insurance companies are more interested in making a profit than helping those they cover properly.
Do you ever find it absurd that we start sentences with, "Luckily, I had cancer..." What a weird thing post cancer life is. :)
You are really smart to have your own copies of all of your medical files!! I moved around so much that a lot of what I had before I started going to my current physician is sort of lost in space somewhere. I am so, so thankful that he has just taken my word on the results of my endoscopies and colonoscopies so I don't have to go through all that a third time. :p
I am sorry you are feeling so sad and crappy. I totally bottomed out emotionally when I was sick, and I had far less on my mind, so I know where you are coming from. I just felt so sad and alone and defeated. My point is, I hope when you are feeling a little less sick you'll feel a little better all around!
Sarah-I sent you an email already but thank you so much for being such a great friend to me!
marty mankins-the deer totally looked like a man standing peeking in my window and it freaked me out until I realized it wasn't. If it really were a person coming to kill me, I would be dead because my brain works so slowly to realize what I am looking at. I seriously walked by thinking "that's a guy peeking in my window" and then it took me several seconds before I thought about that being not good.
throwslikeagirl74-I just sent you an email but long story short, I DO find it completely absurd and also that it somehow always seems to make sense as a thought until I realize what I have said/written. Interesting, isn't it?
wafelenbak-I am positive a lot of it is because I am sick right now. I get so dramatic when I am sick. In fact, almost every time I have ever started a fight with my husband, it turns out that I was coming down with something. It isn't like me to be negative or mean so I should just expect that when I feel that way I am about to get sick. I am feeling better now that I went to my daughter's award ceremony at school. Nothing like seeing my baby get a bunch of awards to cheer me right back up!
That's a lot of heavy stuff to carry all on your own, friend. I'm glad you can unload here and hope it helps in some small way to ease your burden. I wouldn't want to live in limbo either. I want to know! Now!
Your daughter will likely be a very empathetic person having you as a mom and what she's experiencing. This is not entirely a bad thing though I know parents want to protect their kids from any pain.
I saw all sorts of wildlife when I recently visit the Chicago burbs. Rabbits, birds, ducks, dogs, cats, deer, suburbanite women, jocks, etc. Great times.
Good job getting the camera so quickly!
The medical records is a good idea. I was doing that after my ski accident earlier this year and it saved so many troubles: why yes, I have those digital x-rays and the MRI in this folder right here. I can't imagine how big your folder of stuff might be...
And I have to write everything down, as soon as I walk out I forget whatever they tell me, even if it's as simple as a vitamin supplement.
Gary
definitely strong work on having your own medical records to cart around - saves everyone headaches.
for some unsolicited medical advice (keep in mind, i'm not an OB/Gyne!): taking pills to stop the bleeding might work, might only be temporary ... but regardless, you (apparently) still have uterine / cervical tissue there. which therefore has a potential to 1) bleed again, and 2) develop abnormal cells / precancerous lesions. if you really are on the track of "not wanting to worry about it again" another surgery seems like the best option. especially given how young you are - potential for re-bleeding is pretty high, and each occurence would have to be pretty thoroughly investigated.... your doc will have more authoritative advice, but just keep that in mind. and at least the biopsy results were good news - the surgery you'll be looking at will be preventive (and therapeutic wrt bleeding) vs. an oncological / more invasive "cure" surgery.
glad you and your daughter have so much trust. yeah, it sucks that she has worries, but at least you are a good role model for her and she has great support in the rest of the family and her teacher(s)....
hope you are feeling better soon!
I don't know what to say about your possible surgery/no surgery...on one hand, like you, I want to say "I hope the doctor finds another alternative so you don't have to have it" but also like you, I could say "it would be good to get everything done and over with and be healed." I guess you'll have to wait and see what he says after he reads the notes, right?
I know what you mean about things affecting the kids...we are big and can handle stuff, but their little minds don't understand things the same ways and can start worrying about things they don't need to be worrying about...and it takes away from their own life! But of course your daughter worries about you because you're such a great mom and are so good to her! She's just following your example!
Sizzle-I knew you would understand my frustrations.
And you are right, my kids are extremely empathetic, way more than most kids and I am sure it is because of all I have been through, and therefore all THEY have been through in response to everything I have been through. In the long run it will make them awesome people, I just feel bad that they have to go through it.
egan-It sounds like you had a great time. I wish we would have had a chance to get together! I'd love to meet you!
Gary LaPointe-You should have seen me run for the camera. My 5 year old was startled because I ran so fast!
Since most doctors agree that medical records are so helpful for a patient to have, I wonder why they don't just automatically send copies of results to the patients. It seems like if they always made a copy of it and just either gave them to the patient at their visit or automatically mailed it, it would be easier for everyone. My endocrinologist does that, he just mails me a copy of everything he has when he gets it. It is very nice to not have to remember and then fill out the forms to get all the info!
bonzo-I sent you an email earlier, but yes, that is exactly what I was thinking about the pills. I wouldn't want to take them forever, so why not just get the surgery over and done with. I know my doctor feels bad making me do that but I don't really see any other option in the long run.
Happy Working Mom-I feel like a stalker because I hate waiting so much that I am trying to remember which days my doctor is in the office so I can call and ask if he read the notes yet. I will wait and be patient, but I sure don't like it! Hopefully he will call me with a plan soon because I can't plan our summer until I know!
Looks like you need "CAUTION - DEER XING" signs flanking your driveway. : )
As always, thoughts and prayers for you Tori. For the cold, and the serious stuff.
John-I know! I haven't ever seen them in the front yard before!
And thank you. I appreciate it!
Cool pic. We have deer nearby also, but my daughter is bumming because were we used to see them so often is being developed into senior housing. Yet another meadow laid waste to "progress"
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